Resources

In this area of the site, you will find a range of resources on Fetal Alcohol  Spectrum Disorder from Australia and around the world. Many provided via courtesy of EU FASD with our thanks. Simply click on the  links to read more or watch. We thank all contributors.

FASD Hub Australia – Meet Dr Hayley Passmore: Reframe Training
After the Banksia Hill Project uncovered high rates of FASD and severe neurodevelopmental impairments in young people in detention, researchers at the Telethon Kids Institute developed Reframe Training – a course to help professionals coming into contact with these young people understand their needs and respond appropriately.
https://www.youtube.com/watch?v=wyUW0XPW248

Charlotte Winder – People with FASD talk about FASD
Eight interviewees share their thoughts about Fetal Alcohol Spectrum Disorder with the Guelph Wellington Dufferin FASD Action Group.
https://www.youtube.com/watch?v=x1vQvzpsqlU

PA Care Partnership – Improving Outcomes by Modifying Approaches for Those with Fetal Alcohol Spectrum Disorder
This training builds on the first FASD training provided. Due to the brain damage caused by prenatal alcohol exposure, which spans the intellectual spectrum, evidence-based practices that rely on verbal interactions and reward and consequence approaches such as point, level, and privilege systems, are often not successful with them and set them up to fail.
https://www.youtube.com/watch?v=dlkZRoeCb44

Spotlight on FASD – Podcast Season 3, Episode 5 – Education: Insights From The Professionals
This week we’re chatting to Ailsa: teacher, FASD Education Advisor and Mum to get her insights on how educators manage neurodiverse classrooms and what she has learned from parenting and homeschooling a child with FASD.
https://www.youtube.com/watch?v=KLarYyfq4C0

PA Care Partnership – Improving Outcomes by Recognizing Fetal Alcohol Spectrum Disorders (FASD)
When an individual “fails” in treatment and other services, we often label the person as being non-compliant, unmotivated, or disruptive. However, their behavior may well be due to brain damage caused by prenatal alcohol exposure, which is much more common than most people suspect.
https://www.youtube.com/watch?v=3um-XqWGKzg

Spotlight on FASD – Podcast Season 3, Episode 4 – Education: Things Everyone Needs To Know About FASD And Education
In this weeks episode we cover some of what we consider to be the most important things teachers and education professionals need to know about FASD in an education setting.
https://www.youtube.com/watch?v=KvrUMjfhq7M

The Change Starts Here Collaborative – Homeschooling + FASD
Welcome to our channel!  We are a new Collaborative working together to serve families of kids with neurodiversity.  Connect with us!
https://www.youtube.com/watch?v=gomF_ybDSCs

CUPH – Interview with Dr. David Wargowski, MD @ diagnosing FASD
https://vimeo.com/555413250

FASD Hub Scotland – Factsheets – FASD
These resources will be added to regularly please check back for updates, if you can’t find what you are looking for here please feel free to call the helpline and speak to one of the FASD Advisors.
https://www.adoptionuk.org/factsheets-fasd

Proof Alliance – 2021 Proof Alliance Virtual Benefit
Join us as we celebrate and highlight recent advances in our work to prevent fetal alcohol spectrum disorders (FASD) and support all impacted throughout Minnesota and beyond.
https://www.youtube.com/watch?v=8kaw5nqXBf8

The FASD Success Show – #066 Dr. Catherine Lebel: New INFO on FASD and the Brain
Today I am stoked to have a returning guest, Dr. Catherine Lebel. We get down to science today. But don’t worry, I help make this accessible.  We are talking about a recent FASD research paper she wrote and a current study she is working on.
https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5idXp6c3Byb3V0LmNvbS83MTQzNjAucnNz/episode/QnV6enNwcm91dC04NTM3MDYx?ep=14

Health Translations – Alcohol and pregnancy – what you need to know
This document is available in English as well as in languages other than English. Links to the English and multilingual resources can be accessed further below. To download information click on the selected language. This will take you directly to the resource.
https://healthtranslations.vic.gov.au/bhcv2/bhcht.nsf/PresentDetail?Open&s=Alcohol_and_pregnancy_-_what_you_need_to_know

Blackpool Better Start (UK) – Be Your Baby’s Hero – Keep Alcohol at Zero
A new Super Babies campaign has been launched in Blackpool to raise awareness of the dangers of drinking alcohol during pregnancy. The campaign, which features four super-babies, highlights the benefits that an un-born baby gets when it isn’t exposed to alcohol.
https://blackpoolbetterstart.org.uk/be-your-babys-hero/

CanFASD – Student Spotlight: Emerging FASD Research in Canada
This webinar features three presentations from students and early career researchers working in the field of FASD.
https://www.youtube.com/watch?v=fIRpwpFfy2E

Spotlight on FASD – Podcast Season 3, Episode 3 – Education: Reduced Hours & Part-Time Timetables. In this week’s episode we talk about the benefits of reduced hours during the typical school day and the potential of part-time timetables for children and young people living with FASD.  With Clare Devanney Glynn and Jessica Rutherford.
https://www.youtube.com/watch?v=55ccFecZkgM

John Howard Society – Ripples of Hope – Advocating & Supporting People with FASD
Through JHS Pacific’s Speaker Series, we were joined by FASD experts, advocates, and people with personal experience to discuss how we can address stigma and provide support for people with FASD.
https://www.youtube.com/watch?v=tLLLxVy05Ac

Thrive Children’s Centre – FASD: Strengths
https://www.youtube.com/watch?v=Mjb9xpCdnI4

PA Care Partnership – Improving Outcomes by Recognizing Fetal Alcohol Spectrum Disorders (FASD)
When an individual “fails” in treatment and other services, we often label the person as being non-compliant, unmotivated, or disruptive. However, their behavior may well be due to brain damage caused by prenatal alcohol exposure, which is much more common than most people suspect.
https://vimeo.com/549243329

Courthouse Libraries BC – Challenges of FASD for Legal Professionals
In this 1-hr presentation, Dr. Lori Cox from the Eastern Door Centre and Nogemag Healing Lodge outlines the challenges legal professionals face in working with people with FASD. Dr. Cox also provides tips for effective communication with clients with FASD.
https://vimeo.com/545772075

FASD Furfighters – WHAT WE DO
We are a team of pups that are spreading awareness about FASD, one of the leading developmental disabilities in the world. Fetal Alcohol Spectrum Disorder (FASD) is 2.5 times more common than Autism.
https://fasdfurfighters.org/

FASD Awareness – Layla’s Life, My Words: An insight into the world of a child with Foetal Alcohol Spectrum Disorder by Shushma Jain
Shushma Jain sheds light on ‘invisible disabilities’ such as FASD, Cystic Fibrosis, anxiety, sensory processing disorder and attachment parenting. She reveals what strategies she uses to support her child and why she took the decision to home-educate her indefinitely last year.
https://www.fasdawareness.org.uk/useful-resources

FASDHub Scotland – Miranda Eodanable, PhD research student Edinburgh University
Hi my name is Miranda and I am a PhD student at the University of Edinburgh.   I am carrying out research into Fetal Alcohol Spectrum Disorder – known as FASD.
https://www.youtube.com/watch?v=itWLY_LWuQg

FASDHub Scotland – Gemma speaking about parenting a child with FASD
Listen to adoptive mum Gemma speaking during the launch of the 2020 Adoption Barometer in September 2020.  Gemma openly and candidly speaks about her experience of parenting a child with FASD and the support she has received from FASD Hub Scotland and Adoption UK.
https://www.youtube.com/watch?v=xNwBC_6vcjY

Centre of Excellence for Womens Health – FASD Prevention: An Annotated Bibliography of Articles Published in 2020
An Annotated Bibliography of Articles Published in 2020. Each year Canada FASD Research Network (CanFASD) and CEWH compile published research articles related to FASD prevention from around the world.
https://bccewh.bc.ca/2021/05/fasd-prevention-an-annotated-bibliography-of-articles-published-in-2020/?utm_content=buffer4d207&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer

National FASD E-School – Welcome to our e-school
You’ll get access to cutting-edge information. You’ll be connected with others who are at the forefront of learning about FASD.
https://eschool.nationalfasd.org.uk/

FASD Collective – Priority Issues Facing Youth with FASD
The FASD Collective is gathering input on the priority issues facing youth with FASD in Calgary and Area. The survey will take less than 5 minutes to complete and your responses will be anonymous.  Please share this survey, but try to limit responses to 2 – 3 per organization.
https://www.surveymonkey.com/r/2R2THWJ

FASD Success – #065 Talking Social Work, FASD and Parents Helping Parents
The episode this week is a chat with three cool and awesome advocates who are doing great things for caregivers and individuals with FASD. It may be in my home province of Ontario, but what they have to say and are doing can inspire and help where you are.
https://www.fasdsuccess.com/blog/podcast-episode-065

The FASD Project – The Film
The FASD Project is a grass roots movement and documentary film bringing awareness to the invisible disability that is FASD.  1 in 20 Americans are impacted by FASD with little to no support readily available.
https://www.youtube.com/watch?v=6hFZxRU5Jzw

Surrey Place – FASD Workshop – Central Region
FASD workers Eric Marier, Tara Leskey, Meera Sidhu, Jennie Hilts, Ginny Fazari and Jenna Rimmer will present information about the ten brain domains that may be affected by FASD.
https://www.youtube.com/watch?v=lDuUuH6FATA

Health Nexus Santé – FASD: A Shared Responsibility – Promotional webinar
Health Nexus is pleased to announce the upcoming launch of our new FASD Service Provider Training!
https://www.youtube.com/watch?v=6gT25zNC2N0

Surrey Place – FASD Workshop – Northern Region
FASD workers Eric Marier, Randy White/Kebeyaawsung, Chrysta Wood, Cereena Rows, Liane Guenette, and Kim Stewart will present information about the ten brain domains that may be affected by FASD.
https://www.youtube.com/watch?v=eUxODZvjrwE

Surrey Place – FASD Workshop – Eastern Region
FASD workers Eric Marier, Dawn Miller and Victoria Gillan present information about the ten brain domains that may be affected by FASD.
https://www.youtube.com/watch?v=zQhX46G7tvc

Accare Child Study Center – Fetal alcohol spectrum disorders FASD (13 apr 2021)
Alcoholgebruik tijdens de zwangerschap kan tot ernstige schade leiden bij het ongeboren kind. Helaas gebeurt het nog vaak dat, bijvoorbeeld omdat een zwangerschap niet gepland is, de moeder tijdens de eerste periode gedronken heeft omdat zij zich nog niet bewust was van haar zwanger zijn.
https://www.youtube.com/watch?v=5emiTJ9TrOM

Qualified Tutor – Schools don’t work for children with FASD. Here’s how tutors can help out
Jessica Rutherford and Clare Devanney-Glynn are the pioneering hosts of the Spotlight on FASD Podcast (https://podcasts.apple.com/gb/podcast…​) and we welcome them on to discuss this condition in the sphere of education.
https://www.youtube.com/watch?v=XaNyveOaxok

AlcoholFreePregnancy – NOFAS Webinar: Putting the Pieces Together: Using Genes to Understand Variation in FASD
https://www.youtube.com/watch?v=RtOLb-5xhA8

OhioMHAS – Treatment, Advocacy and Resources for FASD
Video recording of webinar titled Treatment, Advocacy and Resources for FASD
https://www.youtube.com/watch?v=SxN_8th7Wa0

AlcoholFreePregnancy – Full Interview: NOFAS and NABCA Project, Featuring Steven Schmidt
https://www.youtube.com/watch?v=xc3JNtMzuGs

FASDHub Scotland – Adults with FASD intro
We are delighted to be working with Carol and Demi to establish an online community within Facebook for Adults with FASD living in Scotland.
https://www.youtube.com/watch?v=DAj_w3YQTiU

Lutherwood – FASD & Educational Accommodations
Individuals that are diagnosed with Fetal Alcohol Spectrum Disorder face many challenges at home, in the community, and in the classroom.
https://www.youtube.com/watch?v=H00e3gXFnFs

The Change Starts Here Collaborative – 10-Minute Training on FASD
If you want to learn more about FASD check out our site on this topic that includes resources and courses: www.thecshcollab.com/fasd
https://www.youtube.com/watch?v=UaHySwOTPBI

MUCH LAUGHTER – Alcohol in Pregnancy and FASD
https://www.youtube.com/watch?v=CdjzdjqyXTs

Jason Palmer – FASD Hope in Foster Care with Natalie Veccione
Natalie Vecchione, Co-Founder of FASD Hope and Host of the FASD Hope podcast series is also a seasoned guest and conference presenter about the basics of FASD and life as a mom of a young adult son living an FASD.
https://www.youtube.com/watch?v=g4vFhc-6ep4

National FASD – Welcome to our e-school
All courses follow the Best Practice in FASD Training Guide developed by National FASD and Seashell as part of a DHSC-funded project. The guide is available in the resources section.
https://eschool.nationalfasd.org.uk/

NIAAA – Interagency Coordinating Committee on Fetal Alcohol Spectrum Disorders – April 2021
Interagency Coordinating Committee on Fetal Alcohol Spectrum Disorders (ICCFASD) (open to the public)
https://videocast.nih.gov/watch=40192

Me and My FASD – Calming Cards
A set of cards with suggestions from more than 70 young people with FASD about what  helps them to stay calm. Use these cards to plan strategies that will help you too.
https://fasd.me/funzone/games-and-activities/calming-cards/

Kinship Care Advice Service for Scotland – An introduction to FASD
FASD Hub Scotland’s presentation on Fetal Alcohol Spectrum Disorder (FASD) – a condition commonly affecting kinship families where there is a history of addiction.
https://www.youtube.com/watch?v=Sxbqj3L63-I

MRPA Maryland Resource Parent Association – MRPA First Tuesday with Barb Clark of NACAC, Topic: Fetal Alcohol Syndrome Disorder
https://www.youtube.com/watch?v=WpRm4K4kR4Q

UMNPediatrics – “Fetal Alcohol Spectrum Disorders in Children and Adolescents…”, by Christopher Boys, PhD, LP
Fetal Alcohol Spectrum Disorders in Children and Adolescents:  Where are We at and Where are We Going?
https://www.youtube.com/watch?v=bqoC8kaTTVQ

Pennsylvania Care Partnership – FASD RESOURCES
Resources for families, community, educators, care providers, and juvenile justice around Fetal Alcohol Spectrum Disorder.
https://www.pacarepartnership.org/resources/fetal-alcohol-spectrum-disorders-fasd/resources

Buzzsprout – FASD Family Life
FASD Family Life is a podcast for families by families raising children and youth with Fetal Alcohol Spectrum Disorder. The podcast host is Robbie Seale, FASD educator, advocate, and mother of four children with FASD.
https://www.buzzsprout.com/1736766

Fasd Success Show – Bonus Episode – All About Insight
I’ve never done this before, a bonus episode of the show. I didn’t plan on creating one, it just turned into one. Here, let me give you some insight. 
https://www.fasdsuccess.com/blog/Bonus-Episode-All-About-Insight

Fasd Success Show – The FASD Justice League: Doctors McLachlan and Flannigan
In the 1996 landmark study by Dr. Anne Streissguth, it was revealed that up to 60% of individuals with FASD will have contact with the justice system.
https://www.fasdsuccess.com/blog/podcast-episode-062

CanFASD – Common Messages

The purpose of this document is to assist those writing and talking about FASD – and the issues related to the disability – to use the same language, statistics, and framing of topics. The intended outcome, over time, will be an improved understanding by the reader/listener with consistent and respectful FASD messaging.
https://canfasd.ca/wp-content/uploads/publications/Common-Messages-EN.pdf

NHS Education for Scotland – Fetal Alcohol Spectrum Disorder (FASD) e-learning resource
Fetal Alcohol Spectrum Disorder (FASD) is both the most common and the most overlooked neurodevelopmental condition in most OECD countries.
https://www.gu.se/en/gnc/fetal-alcohol-spectrum-disorder-fasd-e-learning-resource

Ohio MHAS – Screening, Referral, and Diagnosis of FASD

Thrive Children’s Centre – FASD: What is Fetal Alcohol Spectrum Disorder?

Thrive Children’s Centre – FASD: Impulsivity

Thrive Children’s Centre – FASD: Sleep

Thrive Children’s Centre – FASD: Lying

Ring Productions – FASD & Educational Accommodations
Individuals that are diagnosed with Fetal Alcohol Spectrum Disorder face many challenges at home, in the community, and in the classroom. This video is a first-hand account of how appropriate supports and accommodations can improve the daily life of an individual living with FASD in an educational setting.

ADHD Love – ADHD and FASD
My guest is Aubrey. She is the CEO of CSH Collab. Her company is a “collaborate of advocates and educators for neurodiversity” She shares more details about why she decided to create a company and who all she supports and what she does to support them.

Julie Kurtz – Dr. Kathryn Page on the Intersection of Trauma and FASD
Dr. Kathryn Page has worked in a variety of mental health, child welfare, juvenile justice, and educational settings over the years—all leading to her current focus on Fetal Alcohol Spectrum Disorders.

Courthouse Libraries BC – Understanding FASD: Re-Balancing the Wheel Healing from the Heart
In this 1.5-hr presentation, Lori Cox and Noel Milliea from the Eastern Door Centre and Nogemag Healing Lodge speak about their experience working with people with FASD.
https://vimeo.com/530671044

Kirstie Henderson – FASD Parent and Carer

CanChild – Indigenous Family Engagement in Fetal Alcohol Spectrum Disorder Research
Students of the Family Engagement in Research course developed a webinar that aims to enhance Indigenous family engagement in Fetal Alcohol Spectrum Disorder (FASD) research.

AKCenterForResourceFamilies – FASD Across the Lifespan: Session 2 Infant Learning and Early Intervention

David Balog – Understanding the Brain: Fetal Alcohol Spectrum Disorders (Healing the Brain Book 5)
The brain is a lifelong work in progress. Development takes place most rapidly before birth, maintains a furious pace in infancy and continues briskly through childhood and adolescence, but never ceases altogether.

Attachment Theory in Action – Eileen Devine – The Intersection of Attachment and Fetal Alcohol Spectrum Disorders – Part 2
Karen welcomes Eileen Devine back to the show for the conclusion of their two-part discussion on the intersection of attachment and fetal alcohol spectrum disorders. Part two will be released on Tuesday, December 22nd.

FASD Hub Australia – ‘Research to drive practice and behaviour change’
We invited five early and mid-career researchers to share their work within the theme ‘Research to drive practice and behaviour change’ at a webinar on 25 March, 2021.

The Alcohol and Other Drugs Knowledge Centre – Grog in pregnancy videos – partners, women and men
In these videos community members share information with one another about drinking alcohol and Fetal alcohol spectrum disorder (FASD).

FASD Success – #060 Vanessa Hrvatin: Journalist and FASD Champion
When you think of media coverage for FASD what stories immediately come to your mind? Is it a respectful and honest piece or is it stereotypical and sensationalized? Do you know how feature stories are pitched, decided, and developed? 
https://www.fasdsuccess.com/blog/podcast-episode-060

Lake 88.1 – In Focus: Monday, March 15, 2021- Rob Moore and Elizabeth Holmes [Canada]
We’re joined by Rob Moore and Elizabeth Holmes of the Rural FASD support network who provide an update on recent news and the impact it will have on local children with Fetal Alcohol Spectrum Disorder.

WonderlandKids – What is Hope RISING Clinic?
Hope RISING Clinic (Resources, Intervention, and Support to Inspire and Nurture Growth) for prenatal substance exposure serves children from birth through 12 years of age and their families.

CEWH – Trauma informed approaches to FASD prevention
Webinar 3/3 from the series “Extending Learning about Girls, Women, Alcohol and Pregnancy – A Learning Series”

Edmonton and Area Fetal Alcohol Network – CLEARING THE CLOUDS: A STORY OF FASD
‘Clearing the Clouds, A Story of FASD’ is Melissa’s story, in her own words.

CEWH – Working with Women Who Have FASD Themselves
Webinar 1/3 from the series “Extending Learning about Girls, Women, Alcohol and Pregnancy – A Learning Series”

Northwest Central FASD Network – FASD Sharing Circle
Yvette Kraychy discusses FASD awareness and prevention.

FASDHub Scotland – FASD Moving Forward Together, Scottish Collaborative event 25.02.2021
On 25th February 2021 the Fetal Alcohol Advisory & Support Team (FAAST), FASD Hub Scotland collaborated with other colleagues from across Scotland to delivery a half day symposium on FASD.   Chaired by Professor Moira Plant, speakers represented health, education, research, third sector and those with lived experience of FASD.

Northwest Central FASD Network – FASD Training For Justice
Angela Kemble and Donna Kristiansen provide information and training on FASD.

Spotlight on FASD – Podcast Season 2, Episode 10 – Conversations With a Bio Mum
This week we are tying up our second season of Spotlight on FASD in conversation with Angie, an inspirational biological mother of a child with FASD from Melbourne, Australia.

Spotlight on FASD – Podcast Season 2, Episode 9 – Living life with Sensory Processing Disorder
This week delve deeper into our sensory journey with Emily from 21st Sensory Podcast about navigating life with SPD and Autism alongside a sibling with FASD.

Rural FASD Support Network – Audrey McFarlane on FASD Diagnostics
Audrey McFarlane of CanFASD shares how the Lakeland Centre for FASD started their rural community diagnostic clinic 25 yrs ago.

Office of the Child Advocate – Fetal Alcohol Syndrome
Listen to Louis Bartoshesky chat with CASA Volunteers about Fetal Alcohol Syndrome Disorder.

FASD Success Show – #058 Nancy Lockwood: Practical Tools and Tips for Caregivers and Advocates
Like a few of the guests I have interviewed for the FASD Success Show, our professional lives have intersected at various points. I first met Nancy Lockwood eight years ago when I was invited to present at the Ottawa FASD Caregiver Group. A lot has changed in the last eight years.

Gatlinburg Conference Poster Submission – Parental Scaffolding of Play in Children with Developmental Disabilities: Comparing Fetal Alcohol Spectrum Disorder and Autism Spectrum Disorder
To our knowledge, this is the first study to investigate developmental play levels in children with FASD. Parents of children with FASD demonstrated, on average, lower developmental play levels compared to their children – a pattern that has not previously been reported among parent-child dyads with other developmental disorders.

Community of Practice on ASD/DD – Conversations: What is FASD? What Challenges Does it Bring for Families?
Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with parents and leaders from Orchids WI FASD Services. FASD stands for Fetal Alcohol Spectrum Disorder and is a developmental disability with life-long challenges that is twice as common as autism. Join us to hear from parents facing the challenges of helping children move into adulthood.

PreventionInstitute1 – Adapting Early Childhood Environments for Children with FASD
All children want to, and can, learn and grow. No child wants to fail. It feels good to succeed. Our job as parents, caregivers, and service providers is to adapt routines, activities, and environments to help children succeed. This webinar provides an introduction to adapting early childhood environments for children with FASD.

usgovACF – Fetal Alcohol Spectrum Disorders (audio description)
Parenting a child with a disorder on the fetal alcohol spectrum can present many challenges for foster and adoptive families.

Changing the Perspective – Fetal Alcohol Spectrum Disorder – Interview with Natalie Vecchione
In this interview we learn more about Fetal Alcohol Spectrum Disorder. Natalie adopted her son when he was a baby.  He was later diagnosed with Fetal Alcohol Spectrum Disorder later in life after years of her advocating on his behalf.

Manitoba FASD Coalition – Using Attachment and Circle of Security To Strengthen Your Relationship with Your Child or Student
Joanne Brown presented on the importance of attachment in relationships with children or students with FASD. Joanne also reviewed the basic components of Circle of Security. Original presentation February 26, 2021.

Our Homeschool Castle – Special Needs Parents Interview Series || Natalie Vecchione With FASD Hope
This video is in a new series called special-needs parents interviews. I interviewed my friend Natalie over on zoom about her podcast and website FASD Hope.

Demystifying Medicine – Alcohol Consumption + Pregnancy = A Bad Mix
This video provides information on Fetal Alcohol Spectrum Disorders (FASDs) which occur as a result of alcohol consumption during pregnancy. In the video, the signs and symptoms, different diagnoses, treatment/therapy options, and prevention of FASDs are highlighted.

New Brunswick Adoption Foundation – Webinar : Fetal Alcohol Spectrum Disorder (FASD)
Learn about Fetal Alcohol Spectrum Disorder (FASD): Information, Strategies & Personal Experiences. Hear an informative talk from Maria DesRoches, Coordinator for the FASD Centre of Excellence.

Center for Science and Society – Drinking While Pregnant: The Science and Stigma
Professor Khiara M. Bridges, Professor Caitlin Killian, and Dr. Clare McCormack spoke at Drinking While Pregnant: The Science and Stigma, which took place on January 28, 2021, between 4:30​-6:00 PM (ET) on Zoom. The seminar was organized by Columbia University’s Presidential Scholars in Society and Neuroscience program.

CanFASD – FASD – CANADA´S LEADING DEVELOPMENTAL DISABILITY
Canada FASD Research Network (CanFASD) published a new brochure for some basic information about FASD in Canada.

Elephant In The Room – Caring for those with FASD.

usgovACF – Fetal Alcohol Spectrum Disorders (audio description)
Parenting a child with a disorder on the fetal alcohol spectrum can present many challenges for foster and adoptive families. It is vital for these families and the professionals who support them to understand the reasons behind any learning and behavioral challenges so they—together—can “try differently.”

FosterFamiliesNC – Introduction to Fetal Alcohol Spectrum Disorders
Recent research has shown that 1 in 20 first graders have Fetal Alcohol Spectrum Disorder, but so few physicians, allied health professionals, and parents really know how this lifelong developmental disability manifests itself.

AKCenterForResourceFamilies – FASD Across the Lifespan: Session 1 Introduction and Diagnosis
In Session one of the FASD Across the Lifespan Training Series, Marilyn Pierce-Bulger present information about Fetal Alcohol Spectrum Disorder and prenatal alcohol exposure and details the diagnostic process in Alaska.

Proof Alliance – Let’s Have a Conversation
We appreciate you joining us in having an important talk about fetal alcohol spectrum disorders, or FASD. FASD occurs when a baby is exposed to alcohol in the womb, leading to lifelong brain injury, among many other potential conditions.

AUCD FASD SIG – Services and Supports for Adults with FASD
When children with disabilities become adults, there is a significant reduction in services and supports available. For individuals with fetal alcohol spectrum disorders (FASD), however, that loss of services is even more dramatic.

Elephant In The Room – Podcast: Caring for those with FASD
Talking about raising and caring for individuals with FASD. The trials, the tribulations…the love.

VIDEO: Spotlight on FASD – Podcast Season 2, Episode 6 – Why Does Your Child With FASD Lie?
In this week’s episode we open up the conversation around this very tricky aspect of living with FASD. So many parents, carers, teachers and other professionals really struggle with what feels like being lied to, we talk about what it really is and how we make the adjustments required to handle it.

Rural FASD Support Network – FASD Transitional Planning
Pateresa Winter of the Lakeland Centre for FASD in Cold Lake, Alberta share how they have provided transitional planning for youth and young adults with FASD for the past 12 years in a rural setting.

VIDEO: Adoption with Nyree – Could your ADOPTED child have fetal alcohol syndrome?
Adopting a child with fetal alcohol syndrome which is often undiagnosed and the common behaviours to expect. Many children with fetal alcohol syndrome go undiagnosed and unsupported throughout their lives. Here are some common behaviors for you to understand that may help you on your adoption journey as an adoptive family.

A new website from National FASD UK – for children living with FASD called Me and My FASD

AUSTRALIA

Russell, Elizabeth (Anne) (2018) (2nd ed.) Alcohol and Pregnancy: My Responsible Disturbance. Zeus Publications, Australia

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Infographic: Ability Wheel

This visual tool was developed by Australian clinical psychologist Dr Vanessa Spiller. Dr Spllier writes: The Ability Wheel t is useful to parents, teachers or service providers to summarise a young person’s abilities across the 10 (plus 1) brain domains to share in a clear way accurate information about a young person and their abilities. Key strategies for supporting and accommodating the young person can be added in. This visual tool can’t replace assessment reports but will be helpful for parents and carers to better understand why their young people do the things they do. There is an accompanying video to show how the Ability Wheel can be completed. A blank copy of the tool can be downloaded from the Explained by Brain page on my website at no charge, as is the video https://www.jumpstartpsychology.com/Explained-by-Brain-Group.html

WEBSITES

CANADA

FASD Ontario (July 2019) Parenting indigenous children: A Guide for non-indigenous carers. Health Nexus

Healthy Child Manitoba – What Parents and Caregivers Need to Know About Fetal Alcohol Spectrum Disorder (FASD).

Women’s Centre of Excellence – Supporting Change: Preventing FASD- Video series. A resource to support service providers in their work with women.

Edmonton and fetal alcohol area network – https://edmontonfetalalcoholnetwork.org/

Addiction and Pregnancy – a guide for expectant mothers

Strategies not Solutions

Know FASD Knowledge Index 

Free CANFASD Online Courses

POPFASD British Columbia

CANFASD: FASD Day Toolkit

UNITED STATES

NOFAS

Proof Alliance (formally MOFAS)

University of Nebraska (11 June 2020) Free Training Manual to Help Health Care Providers Recognize, Diagnose Fetal Alcohol Syndrome.

EUROPE

EUFASD Alliance. Website, resources and weekly blog of FASD news.
The goal of the weekly blog ‘is to give a larger picture what happens in the field of alcohol policy and alcohol related harm all over the world to support the principles and actions that decrease this harm’.

Fetal Alcohol Spectrum Disorder (FASD): A booklet for parents, carers and families of children and young people exposed to alcohol during pregnancy. Healthcare Improvement Scotland (2019).

OTHER

Home Advisor – Backyard Camping for Kids with Disabilities

No Fault – Playground Tips for Children with Special Needs

BOOKS

MacDonald AD “When We Were Vikings” follows a young woman born with fetal alcohol syndrome who is also a fierce Viking enthusiast. Booktopia Australia

Honeyman G (March 2018) “Eleanor Oliphant is Completely Fine.” Eleanor Oliphant leads a simple life. She wears the same clothes to work every day, eats the same meal deal for lunch every day and buys the same two bottles of vodka to drink every weekend. Eleanor Oliphant is happy. Nothing is missing from her carefully timetabled life. Except, sometimes, everything. One simple act of kindness is about to shatter the walls Eleanor has built around herself. Now she must learn how to navigate the world that everyone else seems to take for granted – while searching for the courage to face the dark corners she’s avoided all her life. Change can be good. Change can be bad. But surely any change is better than… fine? An astonishing story that powerfully depicts the loneliness of life, and the simple power of a little kindness [Booktopia Australia]