In this area of the site, you will find a range of resources on Fetal Alcohol Spectrum Disorder from Australia and around the world. Many provided via courtesy of EU FASD with our thanks. Simply click on the links to read more or watch. We thank all contributors.
12 June 2022
FASDHub Scotland – Introduction to Fetal Alcohol Spectrum Disorder (FASD)
This short video was created in advance of the Royal College of Paediatrics and Child Health (RCPCH) annual conference on 28th June 2022 to accompany the seminar ‘FASD hear me: Voice of the individual’ presented by Aliy Brown, FASD Services Manager for FASD Hub Scotland, Dr Patricia Jackson, pediatrician from Edinburgh University, and joined virtually by Barbara Ogston, FASD Project Lead for FASD Hub Scotland.
https://www.youtube.com/watch?v=2KeQqE1-GSk
Disability Programs Specialized Services – Fetal Alcohol Spectrum Disorder (FASD)
Learn about Fetal Alcohol Spectrum Disorder (FASD). What causes it? What are the effects? How can it be prevented?
https://www.disabilityprogramsspecializedservices.org/trainings/fetal-alcohol-spectrum-disorder-fasd/
Kids Brain Health Network – ABLE2’s Fetal Alcohol Resource Program – A stakeholder-driven project to support children with FASD
The Fetal Alcohol Resource Program (FARP) at ABLE2 is a stakeholder-driven program created in response to an identified need in the community to support children/youth with FASD, and their caregivers.
https://www.youtube.com/watch?v=stTb7FbeEq8
Fasd Success Show – #109 Olga and Serhii: A New Chapter for this FASD Family From Ukraine
Life as an FASD Caregiver is challenging enough – but what about when you have to leave everything you have ever known, first to seek immediate safety, then as a refugee to another country, and then apply as a refugee yet again – all in the space of three months, while raising two daughters, one with FASD.
https://www.fasdsuccess.com/blog/podcast-episode-109
29 May 2022
Medical Dialogues – Association Between Alcohol Consumption and Miscarriage Predicted by Genotype
https://medicaldialogues.in/mdtv/obstetrics-gynaecology/videos/association-between-alcohol-consumption-and-miscarriage-predicted-by-genotype-93449
Dr. John DeGarmo – FASD Part I Webinar
https://www.youtube.com/watch?v=LzdFy25kaYA
Regional Training – RSA Diagnosing FASD
Health professionals from the FASD Hub Australia explain the common, but little understood disease, Fetal Alcohol Spectrum Disorder (FASD) using the ‘Australian Guide to the diagnosis of FASD’.
https://www.youtube.com/watch?v=SULruf5lv6w
Rural FASD Support Network – Developmental Trauma by Karen Moore
Karen Moore of the Adoption Council of Ontario shares where developmental trauma comes from, what it is, and how we can support those who have experienced it.
https://www.youtube.com/watch?v=TAG8v5vjAxg
Kids Brain Health Network – Alex’s Story – Fetal Alcohol Resource Program
For Tracy and Eric, adoption always felt like the right choice. They adopted their first two children—daughter Mackenzie and son Alex—in 2010, and their family expanded in 2011 when they adopted their youngest son, Jackson.
https://www.youtube.com/watch?v=8y2z550JhSg
Me & My FASD – Coping Resources
There are lots of things you can do to learn to self-regulate and stay cool. Here are some tools to help you think about what helps you.
https://fasd.me/me-and-my-fasd/coping-resources/
FASD Family Life – Together for FASD – An Atlantic Canada Conference with Audrey McFarlane
https://www.buzzsprout.com/1736766/10668327
Fasd Success Show – #108 Part 2 of Candid Conversation with Jessica Birch
In Part 1 of my conversation with Jessica Birch, an FASD advocate, and adult on the Spectrum, we covered her advocacy and journey to get a diagnosis. In Part 2 we talk about life after the diagnosis. She gives us insight into how she copes with her symptoms and what you can do as a caregiver to help your loved ones.
https://www.fasdsuccess.com/blog/podcast-episode-108
NOFASD Australia – Now that you are 18
a booklet to assist young adults with FASD who need to understand some of the responsibilities that the transition into adulthood entails for them.
https://www.nofasd.org.au/parents-carers-and-families/supporting-adults-who-have-fasd/
FASD Awareness #BeAware – Caroline Day – Sunday Times Best Selling Author – FASD Webinar #8
FASD Awareness Presents – In Conversation with Caroline Day, Sunday Times Bestselling Author Thursday 19th May 2022 – Webinar #8
https://www.youtube.com/watch?v=TnmEDpcZssI
NCFASD Informed – New website
NCFASD, informed in North Carolina and an affiliate of FASD United, announced a new website & also launched a new Facebook page for parents of those with diagnosed or suspected FASD
https://ncfasdinformed.org/
SAC County Healthy Beginnings – Healthy Beginnings
Sacramento County Substance Use Prevention and Treatment Service’s (SUPT’s) innovative new project focuses on prenatal substance exposure.
https://sachealthybeginnings.com/
15 May 2022
Manitoba FASD Coalition – Students and Schools: Successful Systems
Kirsten Auld Varey and Brigette Kosmac, from Inclusion Support Services in the Winnipeg School Division share how schools can support students with FASD using a lens of presuming competence, purposeful planning, and promoting student advocacy.
https://www.youtube.com/watch?v=xaZFgJj6bU0
Soft White Underbelly – Fetal Alcohol Syndrome Survivor-Robbie
Soft White Underbelly interview and portrait of Robbie, a survivor of fetal alcohol syndrome in Poca, West Virginia.
https://www.youtube.com/watch?v=zq5ZvrR_zqA
REACH For It! Waterloo Region – FASD-Preparing for Summer Camp
Are you facilitating a camp program for kids with FASD. Learn more about how to make the summer awesome!
https://www.youtube.com/watch?v=R9lSxGBxb08
SACCounty Healthy Beginnings – How can prenatal exposure to alcohol affect the child in the long-term?
How can prenatal exposure to alcohol affect the child in the long-term? Children prenatally exposed to alcohol can have serious long-term problems as they grow up.
https://www.youtube.com/watch?v=pgzdwQGmO20
SACCounty Healthy Beginnings – How Can a Mother’s Drinking During Pregnancy Affect Her Baby’s Brain Development?
A mother’s drinking alcohol during pregnancy can affect her baby’s brain development by changing the way a baby’s brain grows and develops. These changes in the brain can have long-lasting and permanent effects on the child – physically, mentally, emotionally, and socially.
https://www.youtube.com/watch?v=I8kzwkWDs28
Hamilton FASD Collaborative – Transition to Adulthood 2022
This webinar includes themes and tips for Transition planning. It also discusses the following important areas: Stable and supportive team; Creating a consistent & structured environment ; Finances (Income and Budgeting); Housing; Medical, mental health & addiction services; Life skills & Community engagement (Education); Employment ; Crisis plan.
https://www.youtube.com/watch?v=XFioAqfuhN0
Lakeland Centre for FASD – LCFASD Transitional Housing Program
This video shares the Transitional Housing Program offered by the Lakeland Centre for FASD and look at how it fits in with our Prevention Conversation initiative.
https://www.youtube.com/watch?v=V0B8rVhtOik
Colorado Department of Education – Understanding the Brain – FASD
https://vimeo.com/704738965
ConnectFASD – Fact sheets
https://connectfasd.ca/factsheets/
ProofAlliance – New Mobile App: Our Children Are Sacred
In order to reduce rates of FASD in Indigenous communities and support families impacted, Proof Alliance has created Our Children Are Sacred.
https://www.proofalliance.org/ourchildrenaresacred/
Fasd Success Show – #106 Judy Pakozdy Lessons Learned from a 40+ Year FASD Journey
Would you agree the best learning comes from caregivers who have walked the FASD journey? Today, I’m talking with Judy Pakozdy, who has 45 years’ worth of FASD knowledge, training, and caregiving experience.
https://www.fasdsuccess.com/blog/podcast-episode-106
The University of British Columbia – SIB: Self Injurious Behaviour
2021 Wall Scholar Anamaria Richardson (Medicine, UBC) was recently featured on the FASD Family Support Podcast about self injurious behaviour in children and youth with Fetal Alcohol Spectrum Disorder.
https://pwias.ubc.ca/sib-self-injurious-behaviour/
NOFASD Australia – Pregnancy and Alcohol: The Surprising Reality
How much do you know about pregnancy and alcohol? The reality may surprise you. Alcohol exposure while in the womb may cause Fetal Alcohol Spectrum Disorder, or FASD, in the unborn child.
https://anchor.fm/pasurprisingreality/episodes/26-Jigsaw-with-Jennifer-Catlin-e1hp5pt
24 Apr 2022
Hidden Disabilities – FASD with Tristan Casson-Rennie and Jan Griffin
Raising awareness of the dangers of drinking alcohol during pregnancy and removing the stigma associated with foetal alcohol specturm disorder (FASD) in order that the families can seek the correct support is something that both Jan and Tristan are passionate about.
https://hiddendisabilitiesstore.com/insights/post/foetal-alcohol-spectrum-disorder-conversation
Adopt4LifeON – Snack and Chat: Support for Older Caregivers of Adults with FASD
Nancy Lockwood, FASD Consultant with over 25 years experience joined us to talk about Support for Older Caregivers of Adults with FASD. We discussed challenges, positives, support groups and resources.
https://www.youtube.com/watch?v=ZUwQt3yraaQ
FASD Awareness #BeAware – Nick Barratt – Positive Behavioural Support – FASD Webinar#7
This is Webinar#7 in the series on FASD. In this webinar Nick Barratt Director of Nick Barratt Behaviour Change Consultancy, a Behavioural Analyst talks about some of the behaviours and strategies to support individuals and families living with FASD using Positive Behavioural Support.
https://www.youtube.com/watch?v=h1N6OOK5Wwk
FASDHub Scotland – Wednesday Webinar: Fetal Alcohol Advisory, Support & Training (FAAST) Team
Join Dr. Jennifer Shields (Clinical Psychologist) from the FAAST Team and Aliy Brown (FASD Project Manager) as they discuss diagnosis of FASD in Scotland.
https://www.youtube.com/watch?v=zzpxwb6kYts
Spotlight on FASD – Podcast Season 4, Episode 10 – FASD Family Life and FASD Hope
Todays episode is a lovely chat that Clare enjoyed on the FASD Family Life Podcast with our friends, the Women of FASD Podcasting, Robbie Seale host of FASD Family Life and Natalie Vecchione host of FASD Hope.
https://www.youtube.com/watch?v=Hh9U9bfoq9k
Association pour la santé publique du Québec – Alcohol during pregnancy : language disorders in children | ASPQ
The Association pour la santé publique du Québec (ASPQ) is launching its first awareness campaign on abstaining from alcohol during pregnancy and on fetal alcohol spectrum disorder (FASD).
https://www.youtube.com/watch?v=RAdvMYhK0NE
Journeys to Belonging – Episode 96 with guest Donnie Winokur
My guest this week is Donnie Winokur. She shares her thoughts about #belonging and advocacy for #FASD as a parent who educated herself about her son’s diagnosis and needs.
https://anchor.fm/journeys2belonging/episodes/Episode-96-with-guest-Donnie-Winokur-e1haqjg
FASD Caregiver Success – FASD Success Show Short – New Research with Dr. Catherine Lebel
Do you still get people telling you that there isn’t any evidence about the effects of low-level prenatal alcohol exposure? If so, then you want to check out this FASD Success Short with Jeff and Dr. Catherine Lebel – because there is evidence.
https://www.facebook.com/watch/?v=1590293014685636&ref=sharing
Fasd Success Show – #104 Dr. Catherine Lebel: New Study on low levels of prenatal alcohol exposure
We know prenatal alcohol exposure is a risk factor for FASD. We have studies on high levels of prenatal alcohol exposure – but what about low levels? Up until now, we have not had a study to share showing how low levels of prenatal alcohol exposure can affect the brain and behaviour.
https://www.fasdsuccess.com/blog/podcast-episode-104?fbclid=IwAR0N9YjeEstn5eMFh7ql6zJsI5W44z7r0EX0jH_Qsb4Dr-mNJ81X48_4X50
Morning Focus – FASD Ireland Opens New Offices In Ennis
An organisation which works to prevent Foetal Alcohol Spectrum Disorder has established its headquarters in Clare.
https://www.clare.fm/podcasts/fasd-ireland-opens-new-offices-ennis/
Adoptive and Foster Family Coalition of New York – 33rd Annual Conference – Workshop Presenter Interview: Rebecca Tillou
https://www.youtube.com/watch?v=pOMOKQCd-uA
American Academy of Pediatrics – Web-based FASD Toolkit
We’ve assembled resources related to Fetal Alcohol Spectrum Disorders (FASD) to raise awareness of individuals with an FASD, promote screening for prenatal exposure to alcohol and encourage referral for diagnostic evaluations for an FASD.
https://www.aap.org/fasd
14 Apr 2022
The Matilda Centre – Learning with FASD: Evidence-based Fetal Alcohol Spectrum Disorder resources for primary educators
This webinar is for primary school teaching and support staff who are interested in Learning with FASD, an online portal housing evidence-based resources to assist primary educators to understanding and support children with Fetal Alcohol Spectrum Disorder in Australian schools.
https://www.youtube.com/watch?v=ejn_n5YfSK0
PreventionInstitute1 – FASD and Prenatal Development by Soumya Mishra and Ana Andrade
This presentation provides an overview of what FASD is, how alcohol might affect the development of the fetus, and why stigma is a huge barrier to FASD prevention.
https://www.youtube.com/watch?v=uBK8ReK3MWQ
PreventionInstitute1 – Revitalizing Culture and Healing: Catalyzing Action on FASD Prevention by Lindsay Wolfson
This presentation introduces collaboratively developed principles for community-led, community-driven FASD prevention; some ways in which Indigenous communities have implemented wellness and FASD prevention programs; and opportunities to further integrate trauma-informed and stigma-reducing support into FASD prevention efforts.
https://www.youtube.com/watch?v=ZaOAe_liaOM
POPFASD – Get Ready, Do, Done
Executive Function is a set of mental skills and it includes the ability to plan and organize materials and complete tasks.
https://www.youtube.com/watch?v=-N1YpYHnXeU
Maryland Addiction Consultation Service – Alcohol and Pregnancy
Presenter: MACS for MOMs Medical Director, Christopher Welsh, MD
https://www.youtube.com/watch?v=-EAj3q6hamA
FASD Family Life – Research & Resources Edition: WRaP 2.0 – FASD Coaching Partnership Project with Cathy Cross
With more than 20 years lived experience I know it can be a struggle to find resources and research to support you, your family, and your child with Fetal Alcohol Spectrum Disorder.
https://podcasts.apple.com/ca/podcast/fasd-family-life/id1561078669?i=1000553347085
Wired Differently – #010 A message for parents raising children with FASD
It’s human nature not to want others to judge us for how we think or to have a different point of view than most people. This is exactly what happened to me after having released my first episodes, I stopped because I didn’t want to be judged by others.
https://www.wired-differently.com/podcast/episode/3ac5f906/010-a-message-for-parents-raising-children-with-fasd-neurodivergents-kids
FASD Hope – 123 – The FASD Forum ’22 – NOFASD Australia
Episode 123 is a BONUS EPISODE and welcomes back Louise Gray, CEO and Sophie Harrington, COO of NOFASD Australia to announce the first-ever FASD Forum ’22 – Virtual FASD Conference.
https://www.podbean.com/media/share/pb-2nc8y-11e70c3?utm_campaign=i_share_ep&utm_medium=dlink&utm_source=i_share
FASD Hope – 124 – The FAS Project- Netherlands – A Conversation with Luke Schut and Dami
Episode 124 highlights “The FAS Project Netherlands” with Luke Schut (Project Coordinator) and Dami Munter (Foster Mother & Parent Advocate).
https://www.podbean.com/media/share/pb-tj6c3-11ee1d4?utm_campaign=w_share_ep&utm_medium=dlink&utm_source=w_share
Fasd Success Show – #101 Sandra Butcher on NICE and The Time is Now
My guest today, Sandra Butcher, the Chief Executive of the National Organization for FASD (U.K.) said it best: Every victory for FASD in any part of the world is a victory for all of us.
https://www.fasdsuccess.com/blog/podcast-episode-101?fbclid=IwAR1wDxx1dBnR3XAA1gG5Kq1lrfUQFheUCtvuGyTea15-v8tJq8bUKwvmQIA
27 Mar 2022
Nudge Education – FASD Services & Complex Cases
We provide a range of services to support young people with FASD as well as other complex conditions such who have become chronically disengaged from education.
https://nudgeeducation.co.uk/nudgeeducation.co.uk/services/complex-cases-and-fasd
Stuff – Disordered: FASD in New Zealand, the neurodisability caused by alcohol
Documentary: The number of people in New Zealand with Fetal Alcohol Spectrum Disorder (FASD) may be grossly underestimated.
https://www.youtube.com/watch?v=HqkG2ADw_1s
Pauktuutit Inuit Women of Canada – BEAUTY IN BRAIN DIFFERENCE: A CAMPAIGN TO END FASD STIGMA
Our ‘Beauty in Brain Difference’ campaign is grounded in recognizing the strengths and challenges unique to people with Fetal Alcohol Spectrum Disorder (FASD).
https://pauktuutit.ca/health/fetal-alcohol-spectrum-disorder/beauty-in-brain-differences/
National FASD – The National Perspective on Ramping up FASD Prevention, Diagnosis and Support Services 21-03-22
Nine remote meetings convened by the National FASD Experts Committee took place between December 2021 and March 2022.
https://nationalfasd.org.uk/learn-more/policy/innovation-best-practice/
Darren J. Prior / Mac an Phríora – FASD (Fetal Alcohol Spectrum Disorder) and FASD Ireland in 2022 – Near FM
I spoke to Tristan Casson-Rennie the CEO of FASD Ireland about the organisation in 2022. FASD Ireland was set up in September 2021 and in early 2022 opened their HQ in Ennis in Clare.
https://www.youtube.com/watch?v=Y9HUTQWnjOM
CanFASD – Understanding FASD Diagnosis Feb 2022
Researchers have shown that early diagnosis can improve outcomes for people with Fetal Alcohol Spectrum Disorder (FASD). Early diagnosis can lead to earlier support and interventions, which can reduce the risk of health challenges and common secondary outcomes in the future.
https://www.youtube.com/watch?v=C9CUKXgjO7g
The Matilda Centre – What is FASD?
A short video that explains what Fetal Alcohol Spectrum Disorder is and the impacts it can have on an individual.
https://www.youtube.com/watch?v=n9e8uQtwCH0
Last Door – Living and Dealing with FASD
This week on Talk Recovery Radio we have 2 amazing guests Robbie Seale and Lauren Richardson, Robbie the the host of “FASD Family Life Podcast” who also has experiencing with raising children who were prenatally exposed to alcohol.
https://lastdoor.org/blog/living-and-dealing-with-fasd/
FASDHub Scotland – FASD Professionals, FASD Month 2021
We asked FASD professionals from across the country why we should ‘think differently’ about FASD. Here’s what they had to say.
https://www.youtube.com/watch?v=iAWcgEub20g
National FASD – Break it Down!
The FASD Break it Down board is a visual tool to help people with FASD work through good and not-so-good situations, to help them identify different strategies and strengths that can help them.
https://fasd.me/me-and-my-fasd/coping-resources/break-it-down-board/
FASD Awareness #BeAware – Tracy Allen – FASD Awareness Founder and Advocate – Webinar #6
Following a career in retail, Tracy Allen decided to help children through fostering whilst bringing up her family and running a property development business.
https://www.youtube.com/watch?v=DIGAMmHmyHM
ConnectFASD – Fact sheets
https://connectfasd.ca/factsheets/
Rural FASD Support Network – Self-Advocacy Efficacy Scale
Katherine Thompson, MSc. shares why and how she developed evidence-based self-advocacy efficacy scale. These simple six questions help students measure how successful they are at advocating for themselves.
https://www.youtube.com/watch?v=-51U_8mwwos
Learning with FASD – Evidence-based resources to help educators understand and support children with FASD in Australian primary schools.
Learning with FASD is an Australian Government Department of Health funded initiative to provide evidence-based resources to help Australian primary teaching and support staff understand and support children with FASD.
https://learningwithfasd.org.au/
Fasd Success Show – #100 A Meeting with My Mentor: 10 FASD Tips from Donna Debolt
This episode is a celebration. It marks the 100th episode of The FASD Success Show but more importantly, and on a personal note, it brings me to the person who was the catalyst for my own professional FASD journey – Donna Debolt.
https://www.fasdsuccess.com/blog/podcast-episode-100
Creating a family – Parenting Kids with Prenatal Exposure (Part 2): Transitioning Into Adolescence and Adulthood
The impact of prenatal exposures to alcohol and drugs is not something that kids outgrow and the transition into adolescence and adulthood can be particularly tricky. We talk about this transition with Kathy Hotelling, a licensed clinical psychologist who specializes in Fetal Alcohol Spectrum Disorders and is the co-founder of NCFASDInformed.org. She is also the mother of a 27-year-old with FASD.
https://creatingafamily.org/adoption-category/parenting-kids-with-prenatal-exposure-part-2/
13 Dec 2021
FASD Hub Australia – FASD Hub Webinar: Managing alcohol use in pregnancy
Many clinicians tell us they don’t ask about alcohol during pregnancy, as they don’t know how to ask, what to advise or where to refer. In this session held on 1 December 2021, we presented a case study of a woman who is drinking alcohol during pregnancy and heard the perspectives of a panel of health professionals and a biological mother.
https://www.youtube.com/watch?v=PnbEpwfMMM8
CanFASD – The Sensory World of People with FASD: Part 2
Learn more about sensory processing and fetal alcohol spectrum disorder (FASD) with presentations from Lisa Brownstone, an occupational therapist and caregiver, and Shana Mohr, a caregiver of a young girl with FASD. This is Part Two of a three part series on FASD and sensory processing.
https://www.youtube.com/watch?v=CRwO5CZrNXQ
Special Books by Special Kids – Siblings with Fetal Alcohol Syndrome (An Adoption Story)
The Homestead family adopted five kids with fetal alcohol syndrome who are all biological siblings. Schools and society expect them to succeed without accommodations because they “look normal”.
https://www.youtube.com/watch?v=UztXSpOQ2Jg
Illinois Crisis Prevention Network – Understanding Fetal Alcohol Spectrum Disorders
This learning opportunity will educate participants regarding the cause, diagnostic criteria, and life-long effects of fetal alcohol spectrum disorders (FASD) on the person and their families.
https://www.youtube.com/watch?v=UF0akTo7MPY
Kids Brain Health Network – Day 1 – 5. ABLE2’s Fetal Alcohol Resource Program
The Fetal Alcohol Resource Program (FARP) at ABLE2 is a stakeholder-driven program created in response to an identified need in the community to support children/youth with FASD, and their caregivers.
https://vimeo.com/654167258
Bridgeway Family Homes – 4 FASD Training
https://vimeo.com/652592894
Bridgeway Family Homes – 1 FASD Training
https://vimeo.com/652592238
National FASD – How to Make #BottleStoppers
No safe time, no safe amount. Join our craftivist campaign to raise awareness of the dangers of drinking whilst pregnant.
https://vimeo.com/581736394/79b8f53d68
The FASD Brain – #004 Paralyzing Fear
https://www.podbean.com/media/share/pb-a25ay-1150abc?utm_campaign=au_share_ep&utm_medium=dlink&utm_source=au_share
FARE – Thanks Greg Hunt MP for your support and endorsement of Every Moment Matters.
https://twitter.com/FAREAustralia/status/1468732342130954244
FASD Hope – 102 – All About FASD – Adaptive Functioning and FASD with Jerrod Brown, Ph.D.
Episode 102 welcomes back Dr. Jerrod Brown for the final installment of our four-part, 2021 series “All About FASD- Professional Insights and Perspectives”.
https://fasdhope.podbean.com/e/102-all-about-fasd-adaptive-functioning-and-fasd-with-jerrod-brown-phd/
29 Nov 2021
FASD Awareness #BeAware – Shushma Jain – Insights, strategies & home-schooling a child with FASD
In this third webinar we are delighted to welcome author Shushma Jain. Shushma is a writer, blogger, home-educator and parent to a child who has SEN.
https://www.youtube.com/watch?v=rBLnVegpkjQ
Susan Wendel – FASD Diagnosis, Intervention, & Prevention
https://vimeo.com/648830603
PreventFASD.info – The Conceivables
The Conceivables are characters in their very own comic strips, originally created by university students with input from other young people.
https://preventfasd.info/the-conceivables/
Fasd.me – National FASD Christmas Cards
Pack of 10 National FASD Christmas cards. A wonderful Christmas scene adorned with baubles decorated with self portraits from young people living with FASD. These cards are being sold at cost.
https://fasd.me/product/national-fasd-christmas-cards-2021/
FASD Network Sask – FASD and the body (Infographic)
FASD is an invisible disability (we can’t see the disability) so many people don’t understand that it impacts an individual’s whole body, often leading to a lifetime of health issues and chronic pain.
https://twitter.com/SaskFASDNetwork/status/1464254393985941534/photo/1
CanFASD – Improvinf Mental Health and Substance Use Outcomes for Individuals with FASD (Infographic)
We need more interventions directly targeting mental health and substance use challenges among individuals w/ FASD!
https://twitter.com/kd_coons/status/1463567580883562499
NOFASD Australia – #23 The FASD Brain with Gilberto Spencer
Kurt is joined by Gilberto Spencer, FASD Advocate, Brain Coach, Mentor and Podcaster. They chat about his FASD symptoms, the events leading up to his diagnosis and the release of his podcast series; “The FASD Brain”.
https://anchor.fm/pasurprisingreality/episodes/23-The-FASD-Brain-with-Gilberto-Spencer-e1ako5d
FASD Hub Australia – Meet Prue Walker: The role of the social worker in FASD diagnoosis
As a social worker, part of Prue Walker’s role is to make sure that children and families are supported before, during and after their FASD assessments. In this video, Prue shares a snapshot of some of the ways she helps families through this challenging time
FASD Deutschland e.V. – Spot 2 FASD
NEOMED: Project ECHO – FASD – Systems of Care ECHO for MSY
Dr. Gocke Ergun from Wright State University shared her knowledge of this topic with the SOC for MSY ECHO community on October 28th, 2021.
The Florida Center For Early Childhood – FASD Warrior: Jen Werden
This mom of four is on a mission to spread the word about FASD. Jen adopted a son with fetal alcohol syndrome (the most severe case of FASD).
Katy Gentry #SINGOUT – Fetal Alcohol Spectrum Disorder- Education & Resources in Indiana
information on video on fetal alcohol Spectrum disorders and how the education and social Services community can learn more about this disability
Liz Ross-Collier – Characteristics of FASD
NPs, Midwives, & Nurses Partnering to Prevent FASDs – FASD Champions Connect: Laurie Hume, MBA – International FASD Awareness Day, 9/9/2021
Join us to hear Laurie Hume, MBA talk about her experiences as a champion for FASD prevention and awareness.
Spotlight on FASD – Podcast Season 4, Episode 3 – FASD, Trauma and the Criminal Justice System
We’re back in conversation with Jerrod Brown, stepping a little further out of Criminal Justice to dive deeper into connections between FASD and Trauma.
FASD Hope – All About FASD – FASD and Trauma with Jerrod Brown, Ph.D.
Episode 94 is part 2 of a 4 part, monthly series within FASD Hope titled “All About FASD – Professional Insights and Perspectives with Dr. Jerrod Brown”.
FASD Success Show – #087 Ngaire Meadows: No Physical Aggression in a Year!
As a research scientist in the health care field, Ngaire thought she knew everything, but now understands how little she knew. With three girls on the Spectrum, it felt like WW3 in the home with rages, outbursts, and mental health concerns.
FASD Success Show – #086 Kelly Rosenbender: From Struggling Single Mom to Informed and Confident Advocate
Kelly Rosenbender is a single mom working full time and raising a 13-year-old daughter. Despite getting a diagnosis and referrals for service for her daughter, she still felt judged, isolated, and without tools or knowledge to advocate.
CanFASD – Early Life Adversity and FASD: Risks and Opportunities
This webinar recording features a presentation Drs Jacqueline Pei and Katherine Flannigan from the CanFASD.
CanFASD – Participate in our FASD and Cannabis Research Study
Researchers from the University of Saskatchewan are seeking (a) adults with fetal alcohol spectrum disorder, (b) caregivers of an adult with FASD, and (c) service providers who work with someone with FASD to take part in a research survey.
FASDHub Scotland – FASD Professionals, FASD Month 2021
We asked FASD professionals from across the country why we should ‘think differently’ about FASD. Here’s what they had to say.
FosterParentCollege
– Could It
Be FASD?
While fetal alcohol spectrum disorders are surprisingly common in children in
care, they can often be difficult to diagnose, as the signs and symptoms are
associated with a number of other conditions.
The Florida Center For Early Childhood – FASD Warrior: Alex & Pam Carver
16-year old Alex Carver, with the help of his mom Pam Caver, has been outspoken about his everyday struggles with Fetal Alcohol Spectrum Disorder (FASD) publishing videos, blogs, and even articles about the lifetime disability.
Spotlight on FASD – Podcast Season 4, Episode 3 – FASD and the Judicial System
This week’s episode is the beginning of our mini series of interviews with Jerrod Brown; professor, researcher, consultant and trainer from Minnesota.
FASD Hub Scotland – Factsheets – FASD
Our FASD factsheets have been written by the FASD Hub Teams, using their personals and professional knowledge of FASD to build a comprehensive bank of factsheets for caregivers and professionals. New factsheets are regularly added.
FASD Success – #085 Chandra and Jordan Smith: The Power of Same Page Parenting
Previous guests have included moms and dads, but this is the first time we’ve had a couple appear together to talk about their journey as FASD Caregivers. I couldn’t think of a better couple than Chandra and Jordan as the first.
FASD Family Life – Caregiver Stress; Causes and Consequences with Dr. Jerrod Brown
Welcome to FASD Family Life the podcast where we get REAL about raising children and youth with Fetal Alcohol Spectrum Disorder.
Society for the Study of Addiction – Browse through The Pregnancy Edit
The Pregnancy Edit features a series of articles on alcohol-related harm in pregnancy, created for the Society for the Study of Addiction website in September 2021. Browse content from The Pregnancy Edit below.
FASD Hub Australia – Meet Dr Hayley Passmore: Reframe Training
After the Banksia Hill Project uncovered high rates of FASD and severe neurodevelopmental impairments in young people in detention, researchers at the Telethon Kids Institute developed Reframe Training – a course to help professionals coming into contact with these young people understand their needs and respond appropriately.
https://www.youtube.com/watch?v=wyUW0XPW248
Charlotte
Winder – People with FASD talk about FASD
Eight interviewees share their thoughts about Fetal Alcohol Spectrum Disorder
with the Guelph Wellington Dufferin FASD Action Group.
https://www.youtube.com/watch?v=x1vQvzpsqlU
PA
Care Partnership – Improving Outcomes by Modifying Approaches for Those
with Fetal Alcohol Spectrum Disorder
This training builds on the first FASD training provided. Due to the brain
damage caused by prenatal alcohol exposure, which spans the intellectual
spectrum, evidence-based practices that rely on verbal interactions and reward
and consequence approaches such as point, level, and privilege systems, are
often not successful with them and set them up to fail.
https://www.youtube.com/watch?v=dlkZRoeCb44
Spotlight
on FASD – Podcast Season 3, Episode 5 – Education: Insights From The
Professionals
This week we’re chatting to Ailsa: teacher, FASD Education Advisor and Mum to
get her insights on how educators manage neurodiverse classrooms and what she
has learned from parenting and homeschooling a child with FASD.
https://www.youtube.com/watch?v=KLarYyfq4C0
PA
Care Partnership – Improving Outcomes by Recognizing Fetal Alcohol
Spectrum Disorders (FASD)
When an individual “fails” in treatment and other services, we often label the
person as being non-compliant, unmotivated, or disruptive. However, their
behavior may well be due to brain damage caused by prenatal alcohol exposure,
which is much more common than most people suspect.
https://www.youtube.com/watch?v=3um-XqWGKzg
Spotlight
on FASD – Podcast Season 3, Episode 4 – Education: Things Everyone
Needs To Know About FASD And Education
In this weeks episode we cover some of what we consider to be the most
important things teachers and education professionals need to know about FASD
in an education setting.
https://www.youtube.com/watch?v=KvrUMjfhq7M
The
Change Starts Here Collaborative – Homeschooling + FASD
Welcome to our channel! We are a new Collaborative working together to
serve families of kids with neurodiversity. Connect with us!
https://www.youtube.com/watch?v=gomF_ybDSCs
CUPH
– Interview with Dr. David Wargowski, MD @ diagnosing FASD
https://vimeo.com/555413250
FASD
Hub Scotland – Factsheets – FASD
These resources will be added to regularly please check back for updates, if
you can’t find what you are looking for here please feel free to call the
helpline and speak to one of the FASD Advisors.
https://www.adoptionuk.org/factsheets-fasd
Proof
Alliance – 2021 Proof Alliance Virtual Benefit
Join us as we celebrate and highlight recent advances in our work to prevent
fetal alcohol spectrum disorders (FASD) and support all impacted throughout
Minnesota and beyond.
https://www.youtube.com/watch?v=8kaw5nqXBf8
The
FASD Success Show – #066 Dr. Catherine Lebel: New INFO on FASD and the
Brain
Today I am stoked to have a returning guest, Dr. Catherine Lebel. We get down
to science today. But don’t worry, I help make this accessible. We are
talking about a recent FASD research paper she wrote and a current study she is
working on.
https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5idXp6c3Byb3V0LmNvbS83MTQzNjAucnNz/episode/QnV6enNwcm91dC04NTM3MDYx?ep=14
Health
Translations – Alcohol and pregnancy – what you need to know
This document is available in English as well as in languages other than
English. Links to the English and multilingual resources can be accessed
further below. To download information click on the selected language. This
will take you directly to the resource.
https://healthtranslations.vic.gov.au/bhcv2/bhcht.nsf/PresentDetail?Open&s=Alcohol_and_pregnancy_-_what_you_need_to_know
Blackpool
Better Start (UK) – Be Your Baby’s Hero – Keep Alcohol at Zero
A new Super Babies campaign has been launched in Blackpool to raise awareness
of the dangers of drinking alcohol during pregnancy. The campaign, which
features four super-babies, highlights the benefits that an un-born baby gets
when it isn’t exposed to alcohol.
https://blackpoolbetterstart.org.uk/be-your-babys-hero/
CanFASD
– Student Spotlight: Emerging FASD Research in Canada
This webinar features three presentations from students and early career
researchers working in the field of FASD.
https://www.youtube.com/watch?v=fIRpwpFfy2E
Spotlight
on FASD – Podcast Season 3, Episode 3 – Education: Reduced Hours &
Part-Time Timetables. In this week’s episode we talk about the benefits of
reduced hours during the typical school day and the potential of part-time
timetables for children and young people living with FASD. With Clare
Devanney Glynn and Jessica Rutherford.
https://www.youtube.com/watch?v=55ccFecZkgM
John
Howard Society – Ripples of Hope – Advocating & Supporting People
with FASD
Through JHS Pacific’s Speaker Series, we were joined by FASD experts,
advocates, and people with personal experience to discuss how we can address
stigma and provide support for people with FASD.
https://www.youtube.com/watch?v=tLLLxVy05Ac
Thrive
Children’s Centre – FASD: Strengths
https://www.youtube.com/watch?v=Mjb9xpCdnI4
PA
Care Partnership – Improving Outcomes by Recognizing Fetal Alcohol
Spectrum Disorders (FASD)
When an individual “fails” in treatment and other services, we often label the
person as being non-compliant, unmotivated, or disruptive. However, their
behavior may well be due to brain damage caused by prenatal alcohol exposure,
which is much more common than most people suspect.
https://vimeo.com/549243329
Courthouse
Libraries BC – Challenges of FASD for Legal Professionals
In this 1-hr presentation, Dr. Lori Cox from the Eastern Door Centre and
Nogemag Healing Lodge outlines the challenges legal professionals face in
working with people with FASD. Dr. Cox also provides tips for effective communication
with clients with FASD.
https://vimeo.com/545772075
FASD
Furfighters – WHAT WE DO
We are a team of pups that are spreading awareness about FASD, one of the leading
developmental disabilities in the world. Fetal Alcohol Spectrum Disorder (FASD)
is 2.5 times more common than Autism.
https://fasdfurfighters.org/
FASD
Awareness – Layla’s Life, My Words: An insight into the world of a
child with Foetal Alcohol Spectrum Disorder by Shushma Jain
Shushma Jain sheds light on ‘invisible disabilities’ such as FASD, Cystic
Fibrosis, anxiety, sensory processing disorder and attachment parenting. She
reveals what strategies she uses to support her child and why she took the
decision to home-educate her indefinitely last year.
https://www.fasdawareness.org.uk/useful-resources
FASDHub
Scotland – Miranda Eodanable, PhD research student Edinburgh University
Hi my name is Miranda and I am a PhD student at the University of
Edinburgh. I am carrying out research into Fetal Alcohol Spectrum
Disorder – known as FASD.
https://www.youtube.com/watch?v=itWLY_LWuQg
FASDHub
Scotland – Gemma speaking about parenting a child with FASD
Listen to adoptive mum Gemma speaking during the launch of the 2020 Adoption
Barometer in September 2020. Gemma openly and candidly speaks about her
experience of parenting a child with FASD and the support she has received from
FASD Hub Scotland and Adoption UK.
https://www.youtube.com/watch?v=xNwBC_6vcjY
Centre
of Excellence for Womens Health – FASD Prevention: An Annotated
Bibliography of Articles Published in 2020
An Annotated Bibliography of Articles Published in 2020. Each year Canada FASD
Research Network (CanFASD) and CEWH compile published research articles related
to FASD prevention from around the world.
https://bccewh.bc.ca/2021/05/fasd-prevention-an-annotated-bibliography-of-articles-published-in-2020/?utm_content=buffer4d207&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
National
FASD E-School – Welcome to our e-school
You’ll get access to cutting-edge information. You’ll be connected with others
who are at the forefront of learning about FASD.
https://eschool.nationalfasd.org.uk/
FASD
Collective – Priority Issues Facing Youth with FASD
The FASD Collective is gathering input on the priority issues facing youth with
FASD in Calgary and Area. The survey will take less than 5 minutes to complete
and your responses will be anonymous. Please share this survey, but try
to limit responses to 2 – 3 per organization.
https://www.surveymonkey.com/r/2R2THWJ
FASD
Success – #065 Talking Social Work, FASD and Parents Helping Parents
The episode this week is a chat with three cool and awesome advocates who are
doing great things for caregivers and individuals with FASD. It may be in my
home province of Ontario, but what they have to say and are doing can inspire
and help where you are.
https://www.fasdsuccess.com/blog/podcast-episode-065
The FASD Project
– The Film
The FASD Project is a grass roots movement and documentary film bringing
awareness to the invisible disability that is FASD. 1 in 20 Americans are
impacted by FASD with little to no support readily available.
https://www.youtube.com/watch?v=6hFZxRU5Jzw
Surrey Place – FASD
Workshop – Central Region
FASD workers Eric Marier, Tara Leskey, Meera Sidhu, Jennie Hilts, Ginny Fazari
and Jenna Rimmer will present information about the ten brain domains that may
be affected by FASD.
https://www.youtube.com/watch?v=lDuUuH6FATA
Health Nexus Santé
– FASD: A Shared Responsibility – Promotional webinar
Health Nexus is pleased to announce the upcoming launch of our new FASD Service
Provider Training!
https://www.youtube.com/watch?v=6gT25zNC2N0
Surrey Place – FASD
Workshop – Northern Region
FASD workers Eric Marier, Randy White/Kebeyaawsung, Chrysta Wood, Cereena Rows,
Liane Guenette, and Kim Stewart will present information about the ten brain
domains that may be affected by FASD.
https://www.youtube.com/watch?v=eUxODZvjrwE
Surrey Place – FASD
Workshop – Eastern Region
FASD workers Eric Marier, Dawn Miller and Victoria Gillan present information
about the ten brain domains that may be affected by FASD.
https://www.youtube.com/watch?v=zQhX46G7tvc
Accare Child Study
Center – Fetal alcohol spectrum disorders FASD (13 apr 2021)
Alcoholgebruik tijdens de zwangerschap kan tot ernstige schade leiden bij het
ongeboren kind. Helaas gebeurt het nog vaak dat, bijvoorbeeld omdat een
zwangerschap niet gepland is, de moeder tijdens de eerste periode gedronken
heeft omdat zij zich nog niet bewust was van haar zwanger zijn.
https://www.youtube.com/watch?v=5emiTJ9TrOM
Qualified Tutor
– Schools don’t work for children with FASD. Here’s how tutors can help
out
Jessica Rutherford and Clare Devanney-Glynn are the pioneering hosts of the
Spotlight on FASD Podcast (https://podcasts.apple.com/gb/podcast…)
and we welcome them on to discuss this condition in the sphere of education.
https://www.youtube.com/watch?v=XaNyveOaxok
AlcoholFreePregnancy
– NOFAS Webinar: Putting the Pieces Together: Using Genes to Understand
Variation in FASD
https://www.youtube.com/watch?v=RtOLb-5xhA8
OhioMHAS – Treatment,
Advocacy and Resources for FASD
Video recording of webinar titled Treatment, Advocacy and Resources for FASD
https://www.youtube.com/watch?v=SxN_8th7Wa0
AlcoholFreePregnancy
– Full Interview: NOFAS and NABCA Project, Featuring Steven Schmidt
https://www.youtube.com/watch?v=xc3JNtMzuGs
FASDHub Scotland
– Adults with FASD intro
We are delighted to be working with Carol and Demi to establish an online
community within Facebook for Adults with FASD living in Scotland.
https://www.youtube.com/watch?v=DAj_w3YQTiU
Lutherwood – FASD
& Educational Accommodations
Individuals that are diagnosed with Fetal Alcohol Spectrum Disorder face many
challenges at home, in the community, and in the classroom.
https://www.youtube.com/watch?v=H00e3gXFnFs
The Change Starts Here
Collaborative – 10-Minute Training on FASD
If you want to learn more about FASD check out our site on this topic that
includes resources and courses: www.thecshcollab.com/fasd
https://www.youtube.com/watch?v=UaHySwOTPBI
MUCH LAUGHTER – Alcohol
in Pregnancy and FASD
https://www.youtube.com/watch?v=CdjzdjqyXTs
Jason Palmer – FASD
Hope in Foster Care with Natalie Veccione
Natalie Vecchione, Co-Founder of FASD Hope and Host of the FASD Hope podcast
series is also a seasoned guest and conference presenter about the basics of
FASD and life as a mom of a young adult son living an FASD.
https://www.youtube.com/watch?v=g4vFhc-6ep4
National FASD – Welcome
to our e-school
All courses follow the Best Practice in FASD Training Guide developed by
National FASD and Seashell as part of a DHSC-funded project. The guide is
available in the resources section.
https://eschool.nationalfasd.org.uk/
NIAAA – Interagency
Coordinating Committee on Fetal Alcohol Spectrum Disorders – April 2021
Interagency Coordinating Committee on Fetal Alcohol Spectrum Disorders
(ICCFASD) (open to the public)
https://videocast.nih.gov/watch=40192
Me and My FASD – Calming
Cards
A set of cards with suggestions from more than 70 young people with FASD about
what helps them to stay calm. Use these cards to plan strategies that
will help you too.
https://fasd.me/funzone/games-and-activities/calming-cards/
Kinship Care Advice
Service for Scotland – An introduction to FASD
FASD Hub Scotland’s presentation on Fetal Alcohol Spectrum Disorder (FASD) – a
condition commonly affecting kinship families where there is a history of
addiction.
https://www.youtube.com/watch?v=Sxbqj3L63-I
MRPA Maryland Resource
Parent Association – MRPA First Tuesday with Barb Clark of NACAC,
Topic: Fetal Alcohol Syndrome Disorder
https://www.youtube.com/watch?v=WpRm4K4kR4Q
UMNPediatrics – “Fetal
Alcohol Spectrum Disorders in Children and Adolescents…”, by Christopher
Boys, PhD, LP
Fetal Alcohol Spectrum Disorders in Children and Adolescents: Where are
We at and Where are We Going?
https://www.youtube.com/watch?v=bqoC8kaTTVQ
Pennsylvania Care
Partnership – FASD RESOURCES
Resources for families, community, educators, care providers, and juvenile
justice around Fetal Alcohol Spectrum Disorder.
https://www.pacarepartnership.org/resources/fetal-alcohol-spectrum-disorders-fasd/resources
Buzzsprout – FASD
Family Life
FASD Family Life is a podcast for families by families raising children and
youth with Fetal Alcohol Spectrum Disorder. The podcast host is Robbie Seale,
FASD educator, advocate, and mother of four children with FASD.
https://www.buzzsprout.com/1736766
Fasd Success Show
– Bonus Episode – All About Insight
I’ve never done this before, a bonus episode of the show. I didn’t plan on
creating one, it just turned into one. Here, let me give you some
insight.
https://www.fasdsuccess.com/blog/Bonus-Episode-All-About-Insight
Fasd Success Show
– The FASD Justice League: Doctors McLachlan and Flannigan
In the 1996 landmark study by Dr. Anne Streissguth, it was revealed that up to
60% of individuals with FASD will have contact with the justice system.
https://www.fasdsuccess.com/blog/podcast-episode-062
CanFASD – Common Messages
The purpose of this
document is to assist those writing and talking about FASD – and the issues
related to the disability – to use the same language, statistics, and framing
of topics. The intended outcome, over time, will be an improved understanding
by the reader/listener with consistent and respectful FASD messaging.
https://canfasd.ca/wp-content/uploads/publications/Common-Messages-EN.pdf
NHS Education for
Scotland – Fetal Alcohol Spectrum Disorder (FASD) e-learning resource
Fetal Alcohol Spectrum Disorder (FASD) is both the most common and the most
overlooked neurodevelopmental condition in most OECD countries.
https://www.gu.se/en/gnc/fetal-alcohol-spectrum-disorder-fasd-e-learning-resource
Ohio MHAS – Screening, Referral, and Diagnosis of FASD
Thrive Children’s Centre – FASD: What is Fetal Alcohol Spectrum Disorder?
Thrive Children’s Centre – FASD: Impulsivity
Thrive Children’s Centre – FASD: Sleep
Thrive Children’s Centre – FASD: Lying
Ring Productions – FASD & Educational Accommodations
Individuals that are diagnosed with Fetal Alcohol Spectrum Disorder face many challenges at home, in the community, and in the classroom. This video is a first-hand account of how appropriate supports and accommodations can improve the daily life of an individual living with FASD in an educational setting.
ADHD Love – ADHD and FASD
My guest is Aubrey. She is the CEO of CSH Collab. Her company is a “collaborate of advocates and educators for neurodiversity” She shares more details about why she decided to create a company and who all she supports and what she does to support them.
Julie Kurtz – Dr. Kathryn Page on the Intersection of Trauma and FASD
Dr. Kathryn Page has worked in a variety of mental health, child welfare, juvenile justice, and educational settings over the years—all leading to her current focus on Fetal Alcohol Spectrum Disorders.
Courthouse Libraries BC – Understanding FASD: Re-Balancing the Wheel Healing from the Heart
In this 1.5-hr presentation, Lori Cox and Noel Milliea from the Eastern Door Centre and Nogemag Healing Lodge speak about their experience working with people with FASD.
https://vimeo.com/530671044
Kirstie Henderson – FASD Parent and Carer
CanChild – Indigenous Family Engagement in Fetal Alcohol Spectrum Disorder Research
Students of the Family Engagement in Research course developed a webinar that aims to enhance Indigenous family engagement in Fetal Alcohol Spectrum Disorder (FASD) research.
AKCenterForResourceFamilies – FASD Across the Lifespan: Session 2 Infant Learning and Early Intervention
David Balog – Understanding the Brain: Fetal Alcohol Spectrum Disorders (Healing the Brain Book 5)
The brain is a lifelong work in progress. Development takes place most rapidly before birth, maintains a furious pace in infancy and continues briskly through childhood and adolescence, but never ceases altogether.
Attachment Theory in Action – Eileen Devine – The Intersection of Attachment and Fetal Alcohol Spectrum Disorders – Part 2
Karen welcomes Eileen Devine back to the show for the conclusion of their two-part discussion on the intersection of attachment and fetal alcohol spectrum disorders. Part two will be released on Tuesday, December 22nd.
FASD Hub Australia – ‘Research to drive practice and behaviour change’
We invited five early and mid-career researchers to share their work within the theme ‘Research to drive practice and behaviour change’ at a webinar on 25 March, 2021.
The Alcohol and Other Drugs Knowledge Centre – Grog in pregnancy videos – partners, women and men
In these videos community members share information with one another about drinking alcohol and Fetal alcohol spectrum disorder (FASD).
FASD Success – #060 Vanessa Hrvatin: Journalist and FASD Champion
When you think of media coverage for FASD what stories immediately come to your mind? Is it a respectful and honest piece or is it stereotypical and sensationalized? Do you know how feature stories are pitched, decided, and developed?
https://www.fasdsuccess.com/blog/podcast-episode-060
Lake 88.1 – In Focus: Monday, March 15, 2021- Rob Moore and Elizabeth Holmes [Canada]
We’re joined by Rob Moore and Elizabeth Holmes of the Rural FASD support network who provide an update on recent news and the impact it will have on local children with Fetal Alcohol Spectrum Disorder.
WonderlandKids – What is Hope RISING Clinic?
Hope RISING Clinic (Resources, Intervention, and Support to Inspire and Nurture Growth) for prenatal substance exposure serves children from birth through 12 years of age and their families.
CEWH – Trauma informed approaches to FASD prevention
Webinar 3/3 from the series “Extending Learning about Girls, Women, Alcohol and Pregnancy – A Learning Series”
Edmonton and Area Fetal Alcohol Network – CLEARING THE CLOUDS: A STORY OF FASD
‘Clearing the Clouds, A Story of FASD’ is Melissa’s story, in her own words.
CEWH – Working with Women Who Have FASD Themselves
Webinar 1/3 from the series “Extending Learning about Girls, Women, Alcohol and Pregnancy – A Learning Series”
Northwest Central FASD Network – FASD Sharing Circle
Yvette Kraychy discusses FASD awareness and prevention.
FASDHub Scotland – FASD Moving Forward Together, Scottish Collaborative event 25.02.2021
On 25th February 2021 the Fetal Alcohol Advisory & Support Team (FAAST), FASD Hub Scotland collaborated with other colleagues from across Scotland to delivery a half day symposium on FASD. Chaired by Professor Moira Plant, speakers represented health, education, research, third sector and those with lived experience of FASD.
Northwest Central FASD Network – FASD Training For Justice
Angela Kemble and Donna Kristiansen provide information and training on FASD.
Spotlight on FASD – Podcast Season 2, Episode 10 – Conversations With a Bio Mum
This week we are tying up our second season of Spotlight on FASD in conversation with Angie, an inspirational biological mother of a child with FASD from Melbourne, Australia.
Spotlight on FASD – Podcast Season 2, Episode 9 – Living life with Sensory Processing Disorder
This week delve deeper into our sensory journey with Emily from 21st Sensory Podcast about navigating life with SPD and Autism alongside a sibling with FASD.
Rural FASD Support Network – Audrey McFarlane on FASD Diagnostics
Audrey McFarlane of CanFASD shares how the Lakeland Centre for FASD started their rural community diagnostic clinic 25 yrs ago.
Office of the Child Advocate – Fetal Alcohol Syndrome
Listen to Louis Bartoshesky chat with CASA Volunteers about Fetal Alcohol Syndrome Disorder.
FASD Success Show – #058 Nancy Lockwood: Practical Tools and Tips for Caregivers and Advocates
Like a few of the guests I have interviewed for the FASD Success Show, our professional lives have intersected at various points. I first met Nancy Lockwood eight years ago when I was invited to present at the Ottawa FASD Caregiver Group. A lot has changed in the last eight years.
Gatlinburg Conference Poster Submission – Parental Scaffolding of Play in Children with Developmental Disabilities: Comparing Fetal Alcohol Spectrum Disorder and Autism Spectrum Disorder
To our knowledge, this is the first study to investigate developmental play levels in children with FASD. Parents of children with FASD demonstrated, on average, lower developmental play levels compared to their children – a pattern that has not previously been reported among parent-child dyads with other developmental disorders.
Community of Practice on ASD/DD – Conversations: What is FASD? What Challenges Does it Bring for Families?
Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with parents and leaders from Orchids WI FASD Services. FASD stands for Fetal Alcohol Spectrum Disorder and is a developmental disability with life-long challenges that is twice as common as autism. Join us to hear from parents facing the challenges of helping children move into adulthood.
PreventionInstitute1 – Adapting Early Childhood Environments for Children with FASD
All children want to, and can, learn and grow. No child wants to fail. It feels good to succeed. Our job as parents, caregivers, and service providers is to adapt routines, activities, and environments to help children succeed. This webinar provides an introduction to adapting early childhood environments for children with FASD.
usgovACF – Fetal Alcohol Spectrum Disorders (audio description)
Parenting a child with a disorder on the fetal alcohol spectrum can present many challenges for foster and adoptive families.
Changing the Perspective – Fetal Alcohol Spectrum Disorder – Interview with Natalie Vecchione
In this interview we learn more about Fetal Alcohol Spectrum Disorder. Natalie adopted her son when he was a baby. He was later diagnosed with Fetal Alcohol Spectrum Disorder later in life after years of her advocating on his behalf.
Manitoba FASD Coalition – Using Attachment and Circle of Security To Strengthen Your Relationship with Your Child or Student
Joanne Brown presented on the importance of attachment in relationships with children or students with FASD. Joanne also reviewed the basic components of Circle of Security. Original presentation February 26, 2021.
Our Homeschool Castle – Special Needs Parents Interview Series || Natalie Vecchione With FASD Hope
This video is in a new series called special-needs parents interviews. I interviewed my friend Natalie over on zoom about her podcast and website FASD Hope.
Demystifying Medicine – Alcohol Consumption + Pregnancy = A Bad Mix
This video provides information on Fetal Alcohol Spectrum Disorders (FASDs) which occur as a result of alcohol consumption during pregnancy. In the video, the signs and symptoms, different diagnoses, treatment/therapy options, and prevention of FASDs are highlighted.
New Brunswick Adoption Foundation – Webinar : Fetal Alcohol Spectrum Disorder (FASD)
Learn about Fetal Alcohol Spectrum Disorder (FASD): Information, Strategies & Personal Experiences. Hear an informative talk from Maria DesRoches, Coordinator for the FASD Centre of Excellence.
Center for Science and Society – Drinking While Pregnant: The Science and Stigma
Professor Khiara M. Bridges, Professor Caitlin Killian, and Dr. Clare McCormack spoke at Drinking While Pregnant: The Science and Stigma, which took place on January 28, 2021, between 4:30-6:00 PM (ET) on Zoom. The seminar was organized by Columbia University’s Presidential Scholars in Society and Neuroscience program.
CanFASD – FASD – CANADA´S LEADING DEVELOPMENTAL DISABILITY
Canada FASD Research Network (CanFASD) published a new brochure for some basic information about FASD in Canada.
Elephant In The Room – Caring for those with FASD.
usgovACF – Fetal Alcohol Spectrum Disorders (audio description)
Parenting a child with a disorder on the fetal alcohol spectrum can present many challenges for foster and adoptive families. It is vital for these families and the professionals who support them to understand the reasons behind any learning and behavioral challenges so they—together—can “try differently.”
FosterFamiliesNC – Introduction to Fetal Alcohol Spectrum Disorders
Recent research has shown that 1 in 20 first graders have Fetal Alcohol Spectrum Disorder, but so few physicians, allied health professionals, and parents really know how this lifelong developmental disability manifests itself.
AKCenterForResourceFamilies – FASD Across the Lifespan: Session 1 Introduction and Diagnosis
In Session one of the FASD Across the Lifespan Training Series, Marilyn Pierce-Bulger present information about Fetal Alcohol Spectrum Disorder and prenatal alcohol exposure and details the diagnostic process in Alaska.
Proof Alliance – Let’s Have a Conversation
We appreciate you joining us in having an important talk about fetal alcohol spectrum disorders, or FASD. FASD occurs when a baby is exposed to alcohol in the womb, leading to lifelong brain injury, among many other potential conditions.
AUCD FASD SIG – Services and Supports for Adults with FASD
When children with disabilities become adults, there is a significant reduction in services and supports available. For individuals with fetal alcohol spectrum disorders (FASD), however, that loss of services is even more dramatic.
Elephant In The Room – Podcast: Caring for those with FASD
Talking about raising and caring for individuals with FASD. The trials, the tribulations…the love.
VIDEO: Spotlight on FASD – Podcast Season 2, Episode 6 – Why Does Your Child With FASD Lie?
In this week’s episode we open up the conversation around this very tricky aspect of living with FASD. So many parents, carers, teachers and other professionals really struggle with what feels like being lied to, we talk about what it really is and how we make the adjustments required to handle it.
Rural FASD Support Network – FASD Transitional Planning
Pateresa Winter of the Lakeland Centre for FASD in Cold Lake, Alberta share how they have provided transitional planning for youth and young adults with FASD for the past 12 years in a rural setting.
VIDEO: Adoption with Nyree – Could your ADOPTED child have fetal alcohol syndrome?
Adopting a child with fetal alcohol syndrome which is often undiagnosed and the common behaviours to expect. Many children with fetal alcohol syndrome go undiagnosed and unsupported throughout their lives. Here are some common behaviors for you to understand that may help you on your adoption journey as an adoptive family.
A new website from National FASD UK – for children living with FASD called Me and My FASD
AUSTRALIA
Infographic: Ability Wheel
This visual tool was developed by Australian clinical psychologist Dr Vanessa Spiller. Dr Spllier writes: The Ability Wheel t is useful to parents, teachers or service providers to summarise a young person’s abilities across the 10 (plus 1) brain domains to share in a clear way accurate information about a young person and their abilities. Key strategies for supporting and accommodating the young person can be added in. This visual tool can’t replace assessment reports but will be helpful for parents and carers to better understand why their young people do the things they do. There is an accompanying video to show how the Ability Wheel can be completed. A blank copy of the tool can be downloaded from the Explained by Brain page on my website at no charge, as is the video https://www.jumpstartpsychology.com/Explained-by-Brain-Group.html
WEBSITES
CANADA
FASD Ontario (July 2019) Parenting indigenous children: A Guide for non-indigenous carers. Health Nexus
Healthy Child Manitoba – What Parents and Caregivers Need to Know About Fetal Alcohol Spectrum Disorder (FASD).
Women’s Centre of Excellence – Supporting Change: Preventing FASD- Video series. A resource to support service providers in their work with women.
Edmonton and fetal alcohol area network – https://edmontonfetalalcoholnetwork.org/
Addiction and Pregnancy – a guide for expectant mothers
Free CANFASD Online Courses
- Foundations of FASD
- FASD Strategies for School Staff II: Practical Strategies for the School Environment builds on Foundations of FASD
POPFASD British Columbia
- A range of resources from FASD Outreach
- A collection of over 50 eLearning videos (and counting) provides strategies, techniques, guides and stories about FASD from the classroom and beyond, as well as research, diagnostic criteria, and physiological and behavioural impacts of FASD. These videos are made available on the YouTube channel
UNITED STATES
Proof Alliance (formally MOFAS)
University of Nebraska (11 June 2020) Free Training Manual to Help Health Care Providers Recognize, Diagnose Fetal Alcohol Syndrome.
EUROPE
EUFASD Alliance. Website, resources and weekly blog of FASD news.
The goal of the weekly blog ‘is to give a larger picture what happens in the field of alcohol policy and alcohol related harm all over the world to support the principles and actions that decrease this harm’.
Fetal Alcohol Spectrum Disorder (FASD): A booklet for parents, carers and families of children and young people exposed to alcohol during pregnancy. Healthcare Improvement Scotland (2019).
OTHER
Home Advisor – Backyard Camping for Kids with Disabilities
No Fault – Playground Tips for Children with Special Needs
BOOKS
MacDonald AD “When We Were Vikings” follows a young woman born with fetal alcohol syndrome who is also a fierce Viking enthusiast. Booktopia Australia
Honeyman G (March 2018) “Eleanor Oliphant is Completely Fine.” Eleanor Oliphant leads a simple life. She wears the same clothes to work every day, eats the same meal deal for lunch every day and buys the same two bottles of vodka to drink every weekend. Eleanor Oliphant is happy. Nothing is missing from her carefully timetabled life. Except, sometimes, everything. One simple act of kindness is about to shatter the walls Eleanor has built around herself. Now she must learn how to navigate the world that everyone else seems to take for granted – while searching for the courage to face the dark corners she’s avoided all her life. Change can be good. Change can be bad. But surely any change is better than… fine? An astonishing story that powerfully depicts the loneliness of life, and the simple power of a little kindness [Booktopia Australia]