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Welcome to rffada

The Russell Family Fetal Alcohol Disorders Association (rffada) is a national not-for-profit health promotion charity dedicated to ensuring that individuals affected prenatally by alcohol have access to diagnostic services, support and multidisciplinary management planning in Australia and that carers and parents are supported with a “no blame no shame” ethos.

On this site you will find a range of support resources and information relating to Fetal Alcohol Syndrome Disorder, or FASD.

The Russell Family Fetal Alcohol Disorders Association (rffada) Strategic Plan is based on four key priorities.

    1. Prevention
    2. Support
    3. Training and Education
    4. Research and Projects

Criminalising Alcohol Consumption during Pregnancy

 

The rffada does not support the criminalisation of alcohol consumption during pregnancy.  The rffada strongly empathises with the many Australians living with FASD and their need for access to services, the staff of which have been trained in the delivery of FASD-friendly programs, interventions and strategies. The rffada advocates for FASD to be recognised by the government as a disability and urges governments at all levels to invest in interventions and direct assistance to individuals with an FASD. However, the rffada does not support the premise that an individual with a FASD is a victim of a crime and, therefore does not support any form of compensation that has the effect of criminalising alcohol use during pregnancy.

Paraphrased from a statement written by NOFAS

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AMA Alcohol Summit


 The Summit culminated in eight recommendations forming a Plan of Action for the Australian Government however, none mentioned FASD other than acknowledging it as one of the many effects of alcohol use.

The rffada respectfully requests that the AMA considers the inclusion of a more robust and action orientated recommendation specifically for FASD comprised of 3 parts:

 

a.     An ongoing, national educational campaign which offers details on the     benefits of abstaining while pregnant, before conception and while breastfeeding. Combined with this message will be details of the condition itself citing symptoms, signs and characteristics. This message will be given in such a way as to avoid panic but inform the public. A campaign such as this will serve to provide the audience [which will consist of a broad range of population, from teenagers to medical professionals], with a consistent message

b.     Have FASD acknowledged as a disability by the federal government.

c.     Reduce the frequency of mis-diagnosis of FASD so that children do not have multiple diagnoses which ignore the brain-based cognitive impairment of prenatal exposure to alcohol

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Thank you to Fetal Alcohol Syndrome Information Network

 

Peggy Oba and her family organisation The Fetal Alcohol Syndrome Information Network have made a welcome donation to the rffada. Thank you Peggy and family, this will mean printed brochures and posters to distribute to organisations and additional support for our parents and carers.

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Kay Kelly Inducted in Tom and Linda Daschle FASD Hall of Fame


For her dedicated service to FASD, specifically as a leading figure addressing legal issues, NOFAS enshrines Kay Kelly in the Tom and Linda Daschle Hall of Fame.  Ms. Kelly is the Project Director, and one of the founders, of the FASD Legal Issues Resource Center at the Fetal Alcohol and Drug Unit, University of Washington, Seattle.

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Posters and Brochures

If you are pregnant or thinking of becoming pregnant over the holiday season, dont drink.  The consequences could be far more than you could ever imagine.

 

rffada poster

    For a healthy baby, no alcohol while pregnant is safest!

 

If you need more or different information

If there is information on FASD which is not on this website please contact me at This email address is being protected from spambots. You need JavaScript enabled to view it. .   I will source and upload the information that you require.  If you need it then others will too.

Information on this site from volunteers of the rffada is based on experience and is not made by medical personnel unless stated as such.  Additionally,we advise that the information contained in ths site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing health care professional/s.

Thank you

Anne

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