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Welcome to rffada

The Russell Family Fetal Alcohol Disorders Association (rffada) is a national not-for-profit health promotion charity dedicated to ensuring that individuals affected prenatally by alcohol have access to diagnostic services, support and multidisciplinary management planning in Australia and that carers and parents are supported with a “no blame no shame” ethos.

On this site you will find a range of support resources and information relating to Fetal Alcohol Syndrome Disorder, or FASD.

The Russell Family Fetal Alcohol Disorders Association (rffada) Strategic Plan is based on four key priorities.

    1. Prevention
    2. Support
    3. Training and Education
    4. Research and Projects

SPECIFIC GOALS OF THE RFFADA

The specifics of the ultimate goals of the rffada are:

1.        To have an ongoing, national educational campaign which offers details on the benefits of abstaining while pregnant, before conception and while breastfeeding. The campaign will provide an effective and sustained message about the consequences of using alcohol during pregnancy.  Combined with this message will be details of the condition itself citing symptoms, signs and characteristics.  This message will be given in such a way as to avoid panic but inform the public.  A campaign such as this will serve to provide the audience [which will consist of everyone from teenagers to medical professionals], with a consistent message. 

2.        To obtain a mainstream prevalence rate.  Currently we only have evidence of rates of FASD in an Indigenous community.  Our research should take a broader outlook.  As yet, we can only estimate the prevalence of FASD using anecdotal data and research from overseas.  According to recent research from the United States mainstream prevalence rates may be much more than most realise.

3.        Life-long, specific and effective programs, services and strategies for families living with FASD.

4.        Training for medical and allied health professionals to screen for FASD in their patients. While diagnosis remains relatively unattainable for many families, identifying a child with can offer many opportunities for accommodations, strategies and interventions which can reduce the onset of secondary disabilities.

5.        For FASD to be acknowledged as a disability by the government.

6.        To reduce the frequency of mis-diagnosis of FASD so that children do not have multiple diagnoses which ignore the brain-based cognitive impairment of prenatal exposure to alcohol.

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Thank you to Fetal Alcohol Syndrome Information Network

 

Peggy Oba and her family organisation The Fetal Alcohol Syndrome Information Network have made a welcome donation to the rffada. Thank you Peggy and family, this will mean printed brochures and posters to distribute to organisations and additional support for our parents and carers.

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Posters and Brochures

If you are pregnant or thinking of becoming pregnant over the holiday season, dont drink.  The consequences could be far more than you could ever imagine.

 

rffada poster

    For a healthy baby, no alcohol while pregnant is safest!

 

If you need more or different information

If there is information on FASD which is not on this website please contact me at This email address is being protected from spambots. You need JavaScript enabled to view it. .   I will source and upload the information that you require.  If you need it then others will too.

Information on this site from volunteers of the rffada is based on experience and is not made by medical personnel unless stated as such.  Additionally,we advise that the information contained in ths site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing health care professional/s.

Thank you

Anne

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