Donald KA, Wedderburn CJ, Barnett W, Nhapi RT, Rehman AM, Stadler JAM, et al. (2019) Risk and protective factors for child development: An observational South African birth cohort. PLoS Med 16(9): e1002920.
Category: Identification, Prevention and Treatment
It is critical that FASD is identified or even better still, diagnosed as soon as possible. Some times it cant be identified until the child reaches puberty, other times it is clearly evident at birth. The sooner the condition can be identified or diagnosed, the sooner that strategies, interventions and accommodations can be put into place, the better it will be for the child and family. If inapproprate strategies are used eg strategies that are usually used for people without a cognitive impairment, further damage can be done.
It is therefore critical that as soon as it is identified that FASD may be a factor, that appropraite strategies, interventions and accommodations are utilised. Should the condition not be FASD, no harm will be done by using these strategies.
FASD is usually said to be 100% preventable. The rffada does not believe this is the case. There are always reasons that alcohol is consumed. In Australia, those reasons are primarily lack of education (ie media campaign) and lack of consistent messages from health practitioners. There are also unplanned pregnancies which account for around 50% if pregnancies.
There is no ‘treatment’ as such for FASD however managing the many secondary conditions that affect people with FASD is critical. Medication is one of the most critical interventions that can be used to support a person with FASD. There are other evidence-based strategies; practice-based strategies and wisdom-based strategies which are also important.
Online training for professionals
This CPD accredited course has been adapted for use in the UK by health professionals and everyone interested in increasing their knowledge about FASD. It is funded by the Alcohol Education and Research Council.
Alcohol in pregnancy – training for midwives
This is a three-year project to train midwives across the country about FASD. This year NOFAS-UK organised two CPD accredited study days for midwives.
The next study days are on 4th March in London and 18th March in Manchester (click here for details). To book a place please call 0208 458 5951 or complete the Booking Form and email it to firstname.lastname@example.org
To receive one complimentary copy of the “Alcohol in Pregnancy – Information for Midwives” booklet, please email: email@example.com with your full postal address and profession.
New app for parents of children living with FASD
Beth Adams (9 September 2019) App Aims To End Isolation And Educate Parents Whose Children Have Fetal Alcohol Disorders. WSKG News
Booklet: FASDL The Hidden Disability
Edmonton Fetal Alcohol Network Booklet: FASD: The Hidden Disability
London, Canada – new partnership with police inclusive of FASD
Jacquelyn LeBel and Kelly Wang (7 August 2019) Canada: ‘London police announce partnership with MedicAlert’.
Midwives and nurse-midwives may underestimate the dangers of prenatal alcohol use
Eureka Alert (29 July 2019) ‘Midwives and nurse-midwives may underestimate the dangers of prenatal alcohol use.’ The study, “Prenatal alcohol screening during pregnancy by midwives and nurses,” appears in the June 11, 2019 issue of the journal Alcoholism: Clinical and Experimental Research.
Prenatal Alcohol Screening During Pregnancy by Midwives and Nurses
Lisa M. Chiodo, Caitlin Cosmian, Kristy Pereira, Nicole Kent, Robert J. Sokol, and John H. Hannigan (May 2019) ‘Prenatal Alcohol Screening During Pregnancy by Midwives and Nurses‘. Full text. Alcoholism: Clinical and Experimental Research
The Breast Cancer Risk Women May Not Know About.
Lara De Santo (20 June 2019) The Breast Cancer Risk Women May Not Know About. While it’s well established that alcohol can up your chances of getting breast cancer, many people are still in the dark. Get the facts here. Health Central
The Indigenous HealthInfoNet has a large list of resources which can be found at HealthInfoNet.
This is an informal non-medical assessment based on the experience of parents and carers of children with FASD and the research into the condition conducted by rffada members since 2000. Email Elizabeth@rffada.org for a copy
An Education Resource for Health Professionals
A collaborative project between Alcohol Healthwatch and the University of Otago, funded by the Ministry of Health
Read more Alcohol Healthwatch
To facilitate the capability of health professionals to have these consultations in everyday clinical practice a resource has been developed.
Read more ‘The Pregnancy and Alcohol Cessation Toolkit (PACT) Educational Resource’
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